Thank you so much to my family and friends who are taking the time to vote daily in the Vivint Giveaway. Sophia’s Cure is in 10th place so far and we only have 1 week left to vote. Keep them votes coming!! SMA is sooooo close to being cured and EVERY little penny counts!
SMA Candle Lighting 2011
Please light a candle tonight at 8:00 p.m. for the Annual Spinal Muscular Atrophy Candle Lighting Event. Just light your candle from where ever you are at this time. We do this as a time to reflect on those lost, as well as to honor those living daily with SMA. Bring awareness to SMA today!! I will be lighting my candles for my 2 SMA Angels, Cody and Bethany Irvine, and for all those still fighting to survive each day with SMA.
Spotifyerrrrriffic!!!
Got my invitation to Spotify today. Signed up, downloaded, listened. Can I just say two words? IN LOVE! THIS is how music was made to be!
Spotify has landed in the U.S. Sign up to get your invite now – Spotify.
SMA Awareness Month!!
What is SMA? Many people have not heard of SMA or Spinal Muscular Atrophy. I unfortunately, have had these three letters imprinted into my heart since 1995. I gave birth to two children, Cody and Bethany, who were diagnosed with, and would ultimately pass away from those three letters. I HATE those 3 letters and my blood burns for the day I can hear the words, SMA has been cured!! Will you help me in the fight against SMA? Will you spread the word?
To find out how YOU can help visit - Families of Spinal Muscular Atrophy – Awareness Month.
My gift to my kids for SMA Awareness Month
So, this year, for SMA Awareness Month, I have decided to do a Project 365 of sorts for my ALIVE kids. When my SMA Angels were alive, there was no such thing as digital cameras around and I have always regretted not taking more pics than I had of Cody and Beth. Sooo, that’s my gift to my kids this year. To take 1 picture EVERYDAY, for 365 days. A book of memories for Faith and Matthew. A year in pics of their lives!

